International Myeloma Foundation

International Myeloma Foundation (IMF) is a global, non-profit health organization dedicated to improving the lives of patients with multiple myeloma, a type of blood cancer that originates in the plasma cells of the bone marrow. Since its establishment, the IMF has been at the forefront of myeloma research, education, treatment, and advocacy, providing support to patients, families, and healthcare professionals worldwide.

History

The International Myeloma Foundation was founded in 1990 by Susie Novis, Brian G.M. Durie, M.D., and a group of patients affected by multiple myeloma. Their mission was to advance myeloma research, improve patient care, and offer support and education to those affected by the disease. Over the years, the IMF has grown into a leading organization in the myeloma community, funding groundbreaking research and providing comprehensive resources and support services.

Mission and Goals

The primary mission of the IMF is to improve the quality of life of myeloma patients while working towards prevention and a cure. To achieve this, the organization focuses on several key areas:

• Research: Supporting innovative myeloma research to find more effective treatments and, ultimately, a cure.
• Education: Providing accurate, up-to-date information on myeloma to patients, caregivers, and healthcare professionals.
• Support: Offering support groups, hotlines, and online forums to help patients and their families navigate the challenges of living with myeloma.
• Advocacy: Working to ensure that myeloma patients have access to the best possible care and treatments.

Programs and Initiatives

The IMF is known for its wide range of programs and initiatives designed to support the myeloma community:

• Myeloma Research Grants: The IMF funds promising myeloma research projects around the world.
• Patient & Family Seminars: These seminars provide education and support to myeloma patients and their families.
• International Myeloma Working Group: A collaborative network of the world's leading myeloma experts, focused on the development of new treatment guidelines and research.
• Myeloma Information Specialists: A team of trained specialists who provide information and support to patients and caregivers.
• Global Advocacy Program: This program works to improve access to myeloma treatments and care worldwide.

Achievements

Over the years, the IMF has made significant contributions to the field of myeloma research and patient care. Some of its notable achievements include:

• Funding innovative research projects that have led to the development of new treatments and therapies.
• Establishing the International Myeloma Working Group, which has published numerous treatment guidelines and consensus statements.
• Creating comprehensive educational materials and resources for the myeloma community.
• Advocating for policy changes to improve access to treatments and care for myeloma patients.

Future Directions

The IMF continues to work tirelessly towards a world without myeloma. Future directions include expanding its research initiatives, enhancing patient support services, and increasing global advocacy efforts. The organization remains committed to its mission of improving the lives of those affected by myeloma through research, education, support, and advocacy.

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